Showing posts with label chemotherapy. Show all posts
Showing posts with label chemotherapy. Show all posts

Sunday, February 02, 2020

Fists Against The Wall



Last weekend was the 75th anniversary of the liberation of Auschwitz, the notorious German concentration camp in Poland where in just two years over 1 million innocent people were put to death: men, women and children. The anniversary comes and goes each year and there are memorial events at the former killing grounds that attract fewer and fewer survivors and many visitors. For some reason, this year I began reviewing more about what happened. In high school, during a period when I read dense and important world literature, I also read The Rise and Fall of the Third Reich, by William Shirer, (1245 pages). It is mostly forgotten in my mind after 50 years. 

Amy saw that I was studying and getting emotional about what had happened. She pulled a book off of her bookshelf, a small hardback. Saying nothing, she put it on my dresser. Within a day I had begun reading Night, by Elie Wiesel (September 30, 1928 – July 2, 2016). "In Night," Wiesel said, "I wanted to show the end, the finality of the event. Everything came to an end—man, history, literature, religion, God. There was nothing left. And yet we begin again with night.” ( In the above picture, he is in the second row, seventh from left.)


Simultaneously I looked online at pictures of the holocaust and the Nazi perpetrators. Photos of mothers and children being herded off boxcars to take them to the gas chambers, of skeletal forced laborers in horrid conditions, of despicable ghettos imprisoning isolated Jewish populations before being wiped out. I found myself getting angry and researching what became of the Nazi commanders, then seeing them hanged and thinking, “It serves you right.”
A page from Naomi's journal


“Auschwitz is outside of us, but it is all around us, in the air. The plague has died away, but the infection still lingers and it would be foolish to deny it. Rejection of human solidarity, obtuse and cynical indifference to the suffering of others, abdication of the intellect and of moral sense to the principle of authority, and above all, at the root of everything, a sweeping tide of cowardice, a colossal cowardice which masks itself as warring virtue, love of country and faith in an idea.” 
Primo Levi, (Italian, 31 July 1919 – 11 April 1987)  Auschwitz survivor

I grew up in a non-religious household. No mention was made of God or religion. My father worked hard as a social engineer, alongside Robert Kennedy and Sergeant Shriver. HIs time was spent constructing solutions to injustice and implementing them. Once when a teen-ager and I had recently found God, he quoted Karl Marx to me: “Religion is the opiate of the masses.” I took exception, noting all the good that has come from Christian charity and the spread of principles of equality and love.

At nineteen I became a Baha’i, a religion teaching the essential worth of all religions, and the unity and equality of all people. Established by Baháʼu'lláh , (Persian, November 12, 1817 – May 29, 1892) in 1863, it initially grew in Persia and parts of the Middle East, where it has faced ongoing persecution since its inception. 

A beloved Baha’i prayer by Abdul-Baha, the son of Baha’u’llah includes the exhortation, “I will not dwell on the unpleasant things of life, nor will I let trouble harass me .” But what if life itself is cataclysmic without hope? What if there is no pleasantness to enjoy? 
Certainly there were those in the concentration camps who had seen their loved ones marched to the gas chambers, had felt the sting of smoke in their eyes from the furnaces incinerating bodies, and lived without hope in wretched unthinkable existence. Some, like Job’s wife might have thought “Curse God and die!” They are forgiven. Wiesel himself, after surviving the death camp spoke in an interview: “Some people who read my first book, Night, they were convinced that I broke with the faith and broke with God. Not at all. I never divorced God. It is because I believed in God that I was angry at God, and still am. The tragedy of the believer, it is deeper than the tragedy of the non-believer.” (See https://onbeing.org/programs/elie-wiesel-the-tragedy-of-the-believer/ )

When my beloved daughter Naomi fell victim to cancer at seventeen, I had to watch her endure her own holocaust. Dreadful pain spread itself in her body. Doctors said she had little chance to live and she began torturous chemotherapy treatments, locked away from the world at large. Many times, during my own “dark night of the soul,” I found myself thinking, beseeching, how could a loving God allow this? Alone, I beat my fists against the wall and wailed. 


Naomi had to meet her own point of no return. Many times in fact. Did she not wonder perhaps if God had forgotten her? She once said, “I hope not to die a slow, painful death.” But that is exactly what God had in store for her. That was her fate. She fought hard for life, weeding out any semblance of negative thinking that might interfere with her healing. Yet the slow, inexorable death march toward the gas chamber continued. At one point, exhausted, she sought to take her life and be done with it. Like in the Jimi Hendrix song, Castles Made of Sand, where he sings: 

There was a young girl, whose heart was a frown,
'Cause she was crippled for life, and she couldn't speak a sound
And she wished and prayed she could stop living,
So she decided to die
She drew her wheel chair to the edge of the shore, and to her legs she smiled
"You won't hurt me no more"
But then a sight she'd never seen made her jump and say
"Look, a golden winged ship is passing my way"
And it really didn't have to stop, it just kept on going.
And so castles made of sand
Slips into the sea, eventually . . .

One fateful evening in Santa Barbara, California, Naomi swallowed pills, arrived to a lonely beach and walked into the Pacific Ocean to drown. She was saved when she saw a stranger walking and her conscience would not allow her to take her life in front of an innocent person.

She went on to live another seven months before dying at home with peace in her heart. Just before, she had a dream of being on a blissful cruise. In feeble handwriting she managed to write it down on a scrap of paper.



A number of times during the ordeal I found myself down on knees praying fervently for help. I could see the innocents being herded toward the ovens, clutching their little ones and asked, “Please help.” Several times the veils parted and to my surprise I saw angels, in complete tranquility, smiling. Over in a flash, I thought, “but how could you be smiling?” 

After Naomi died, we bathed and dressed her in her bed and put a ring on her finger. It is part of the Baha’i ceremony for the deceased. The ring says: “I came forth from God, and return unto Him, detached from all save Him, holding fast to His Name, the Merciful, the Compassionate”. 

And this is my belief, that this life is a sort of veil and it is lifted when we die.

For those millions who died during the holocaust, the experience was inscrutable. 

Death reaches us all. Some are born and live but a few moments, others longer, but in eternity, this life is but a blink of the eye for everyone.


On that glad night,
in secret, for no one saw me,

nor did I look at anything,

with no other light or guide

than the one that burned in my heart.
This guided me

more surely than the light of noon

to where he was awaiting me

— him I knew so well —

there in a place where no one appeared. 


Excerpt:

Sunday, April 03, 2016

Be Lovingly Present


During my recent trip around the world I had nothing more personal to me than three little framed photographs I always kept near. The portraits are of `Abdu’l-Bahá, Naomi Boone, and Paramahansa Yogananda. All three are abiding now in the angelic realm.

 `Abdu’l-Bahá (Persian/Arabic 23 May 1844 – 28 November 1921) was the son of Bahá'u'lláh ("Glory of God"; 12 November 1817– 29 May 1892) , the founder of the Bahá'í Faith. Naomi Boone (Jan. 11 1980 – July 5, 1999) is my oldest daughter who died of cancer when she was nineteen. Paramahansa Yogananda (Bengali, 5 January 1893– 7 March 1952) was an Indian yogi and guru.

I am especially privileged to have been with Naomi and walked by her side in this world. I wrote a book about our journey together (A Heart Traced In Sand) and used her own writings to reveal her soul. Naomi started writing in diaries at the age of twelve. In addition she left volumes of drawings, paintings, some sculptures, and scribbled affirmations she made during her sufferings. At one point in her last diary, she was upset that she was getting worse, not improving. As she vented, she had the thought that someone would be reading her words after she died. She hated the notion because it was fatalistic. She wrote that she would rather burn her diary. I am glad she did not.

Naomi suffered tremendously before dying, but strove not to let it show. An active athlete in High School, she was on the track and field and cross-country running teams. She was in the Ski club, German Club and went to Germany. She began having difficulty with her leg, and we discovered she had bone cancer. The cancer had metastasized to her lungs as well. The tumor in her hip was very large and expanding—fracturing her bone. The treatments were horrendous. Her hair fell out, she was on crutches, was isolated for spells in hospital rooms . . . constantly hooked up to machines. Meanwhile she was attempting to finish high school between treatments, and applied to college.
She underwent a bone marrow transplant—doses of chemotherapy so high it destroyed her bone marrow. It also destroyed her immune system. Once when she sneezed, her nose bled and would not stop bleeding for three days. A specialist had to be called to constrict the blood vessels in her nose. She was given back stem cells that had been harvested from her earlier, and her bone marrow revived. She was accepted to an art college, and graduated high school.

All along, she fought hard and made every effort to live normally, even taking a job. The cancer retreated but came back and killed her. She had said that she did not want to die a slow agonizing death, but this is what happened. Her leg was terribly swollen, she could not feel her foot, was in intense pain, nauseous, and suffocated to death when her lungs filled with fluid. Yet, just the day before, she managed to say to someone massaging her, “I love my body, it has been so good to me.”

Remarkably, Naomi seldom complained and actually was more concerned for those around her. I barely left her side for two years. After she died, someone said we were like twin flames, and I know that is right.

My life has not been gentle since my father died two years ago, then my wife and I divorced, my first wife died, and then my mother passed away. I have felt sorrow, loneliness, pathos and more. Yet, I have not been blind to the good that occurs and my many fortunes and blessings.

I take solace in her words, and when I feel tired, or that life is unjust, or empty, I remember them. I have taken sentences from her writings, some just before she died, and written them here:

Healing! Loving! Knowing! Wishing! Hoping! Being! Enjoying! Living! Mending! Giving! Praying! Sending! Shining! These gifts of life are what make it possible to fight so hard to keep it.
This world is so full of opportunities that one can hardly keep up with them all. Life is so beautiful, I cherish it and want to be able to see every part of it.
I want to show God that I have learned much and feel I deserve acres of life to unfold for me. I love this life and I want to be here for as long as God allows. I trust that God knows my love for life and the happiness it gives me.
I am chi. I am full of the life force, full of the flowers, trees, the smell of lavender and roses, the feeling of the wind blowing against my face as I run, and the wonder when I go snorkeling and see the other world! That is only a little bit of what the life force is. I am chi, that life force.

It seems there is no way of knowing that everything will be okay. The only thing I can do is trust in God and the power I have within.
Sometimes I am afraid that I might die. It is not that I am afraid of going somewhere else, it is that I don't want to and I am not ready to leave this world. It is not death I fear, It is losing life and people.

As of now, I let go of my fears and troubles. In their place I let God do the work. I let light and energy, wholesomeness and happiness enter my soul. I know everything will be alright because God is with me no matter what.
I am filled with a wonderful sense of happiness. It is an indescribable sense of utmost freedom and joy. When I am in touch with it I just think, Oh, God, thank you for this beautiful body and life. I have learned how to use THANK YOU throughout everything.

Everything is important and nothing is important; everything is illusion back to God. Everything is already accomplished; you just have to bring your consciousness to it: Divine order is always in place. There is no place to go and nothing to do.

In every heart there is a deep sorrow, one that edges in like a whisper on a cold night. The delicacy of a person who is outwardly strong is as delicate as a rose before a frost inwardly.
May I be protected from internal and external harm. May I be healthy and strong,
 May I be happy and at peace.
May I care for myself joyfully.
God is with me, I just need to give it all to Him.

Hardship is something that will make us stronger. I don't know if I have complete evidence of this, but I think that in every situation there is good in it.

Show up and be lovingly present, no matter what it looks like out there or inside yourself. Always speak the truth of your heart.

Dear God, I want to tell you that I am thankful for my remarkable body. The joy in my soul has helped my body know how strong it actually is.